Seguiremos alzando la voz por la salud de la mujer
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00:00There is no sensibility or predisposition, not a sensibility, but a predisposition
00:08that daughters with mothers who have had endometriosis could also have endometriosis.
00:15In other words, there is a certain genetic predisposition to have endometriosis.
00:20Most gynecologists don't invest in the things they need to give better quality of life to their patients.
00:25But the reason for that is because the cost to invest in that is extremely high
00:29and insurance doesn't pay for it.
00:33So it's like the real limit in our country is basically the insurance areas.
00:43So the cost would go to the patient's pocket.
00:47So the only way you can go around that
00:53is basically to say to the patient,
00:55look, I can operate on you, but the cost of all the materials and all that
00:58I have to transfer directly to you, which is high.
01:01For example, I operated on a patient from the Dominican Republic.
01:04I did a laparoscopic hysterectomy.
01:07In that, I've had uterine fibromas that are huge.
01:12Big, I've had a uterus of almost 30 weeks.
01:15No, a uterus of almost 25 weeks of pregnancy.
01:19And we did the hysterectomy for three little holes.
01:22He went home the next day.
01:24In the morning, there was no need to put blood on him.
01:27I mean, nothing.
01:30I also recently did a hysterectomy on Abel Gonzalez.
01:35I operated on a patient, I did the hysterectomy,
01:38and at 3 o'clock, the patient was on his way home to rest.
01:43But since the insurance doesn't cover the da Vinci,
01:46which is crazy.
01:48I mean, the insurance barely covers the basic laparoscopy.
01:51At a very minimal cost.
01:54Which is a cost that is for the hospital, not for the doctor.
01:56For nothing.
01:57The doctor only charged his salary.
01:59But all the materials that I use are from the hospital.
02:02I had to buy my own tray because I use a lot of materials that I don't.
02:05But in the case of the patient that I talked about, the fibromas,
02:08two tweezers broke because the uterus was so hard.
02:11Each tweezer cost $2,500.
02:14Two of them broke.
02:16Which happens here in the United States because they are indestructible.
02:22It happens, but that's what the hospital covers.
02:24But there in the Dominican Republic, it's me.
02:26I operated on the patient, doing a favor to a friend,
02:29and I lost $5,000.
02:31The health system here is useless.
02:43But what I want you to think about,
02:46it's not that the doctors, it's that the insurers keep it that way.
02:51Because it suits them.
02:53So the insurers have too much power.
02:56Because if the doctors say,
02:58well, I'm not going to work with any of the insurers,
03:01the insurers are going to say, no, but let's see how we do with the doctor.
03:07Because if something happens, it's a problem,
03:09and I do a procedure on the patient,
03:11there's a complication because I don't have everything I need on hand.
03:14Who's giving you the face?
03:17The patient or the doctor?
03:19But the doctor in another country doesn't have all the tools he needs.
03:23Because they're good doctors.
03:25I mean, they're good.
03:27But you're as good as the things you have around you.
03:30But most doctors do it from gut to heart.
03:33Really?
03:34They don't have tools, they don't have material,
03:36they don't have support, they don't have anything.
03:38And they do it, I mean,
03:40and they're people who deviate from their patients.
03:42But if you don't have the material,
03:44there are things you can avoid,
03:46but if you don't have the material, what are you going to do?
03:48But insurance won't cover it.
03:50I've had a lot during these 13 years,
03:53very difficult moments, and obviously,
03:55for me, I'm a very sensitive person,
03:58and from my role as a patient,
04:01I'm very empathetic because I understand firsthand
04:03what it means to live with this disease,
04:05but it has touched my heart,
04:07and it has really broken me.
04:09We've had several situations,
04:12especially with patients who, beyond the pain,
04:15it's like the frustration of living with this disease,
04:18as it's so incapacitating,
04:20the lack of understanding, the statements,
04:23the despair of that chronic pain that doesn't go away,
04:26and we've had several situations
04:29of frustration and despair,
04:31to the point of wanting to take your life,
04:33it's been one of the most difficult things
04:35that we've lived in the association.
04:37Through the emotional support line,
04:39we have a protocol that the psychologists built,
04:42and they also trained in emotional emergencies,
04:46so they follow the protocol,
04:48they accompany the patient,
04:51the emergency person,
04:53the emergency contact of that patient,
04:55who is inside our database,
04:57and they are given a guide,
04:59and they refer to the health professional
05:01who is accompanying them,
05:03or who is going to accompany their process,
05:05because it's not something of the moment,
05:07but it has to have continuity.
05:10The hysterectomy was done robotically,
05:13thank God, because that facilitates a lot
05:16the recovery,
05:18not like the paroscopy, but done with a robot,
05:20and from there,
05:22obviously when they extracted what they extracted,
05:24they confirmed that I had,
05:27because that doesn't go away,
05:29although they removed it from the uterus,
05:30it doesn't go away,
05:31that I have grade 2 endometriosis,
05:33that I have adenomyosis,
05:34that I had not only 5 or 6 myomas,
05:36but more than 20,
05:37that I had cysts in the fallopian tubes,
05:40and the endometriosis was already taking part of the ovaries,
05:43that they could remove,
05:45and part of the rectum.
05:46Still, and not only in the Dominican Republic,
05:48but worldwide, I would say,
05:50there is very little knowledge of the disease,
05:54and it is misdiagnosed,
05:56it is treated in different ways,
05:58it is treated like,
05:59well, it's the rule,
06:01you're a woman,
06:02that's what has to happen,
06:03that's why it hurts you,
06:04all periods come with pain,
06:07that's normal.
06:08But really,
06:09as I get more and more informed,
06:11it is assumed that there should not be
06:13that kind of great discomfort,
06:16of pain,
06:17that even affects the quality of life,
06:19because that affects,
06:20that can,
06:21it affected me to do exercises,
06:23it affected me for sexual relations,
06:25it affected me for many things,
06:27because it hurt me,
06:29I mean,
06:30there were even exercises
06:31that I felt uncomfortable,
06:32that I did not imagine,
06:33I even,
06:34when, days or weeks before the surgery,
06:36I said,
06:37how will it be to live without pain?
06:38Because for me,
06:39it was normal.
06:41We cried,
06:42the two of us,
06:44we cried,
06:46it is not overcome,
06:48because,
06:52it is difficult,
06:54I do not have children,
06:55my husband neither,
06:56so,
07:00my husband told me,
07:01I did not marry you for children,
07:03I did not marry you for children,
07:05I did not marry you for a uterus,
07:07I married you,
07:08and I am with you because I love you.
07:11And this is a battle
07:13that we are going to fight,
07:15the two of us,
07:16we are going to fight forward.
07:21He told me,
07:22let's dedicate ourselves to travel,
07:26to be happy,
07:28because you are more than that.
07:35And the truth is,
07:36I do not know how to thank God,
07:38that he has given me so much,
07:39despite everything,
07:42I do not have,
07:43because,
07:46although I know that he loves me madly,
07:48I,
07:49one always expects the worst,
07:51one always expects a different answer,
07:53and it scares you a lot,
07:54it is very scary for you to tell your partner,
07:56look, my love,
07:57I have this disease,
07:58that the doctors tell him,
07:59because in the case of us,
08:00my doctor was very explicit,
08:02and I loved it,
08:04that he will explain everything to us,
08:05from beginning to end.