At 27, Kirsty Hill began experiencing severe pain in her left eye, leading to its removal in 2019 and final stitching in 2024.
Despite living with Fraser syndrome, she confidently embraces her individuality, using bright clothing to shift focus from her disabilities.
Now a psychologist, Kirsty inspires others to celebrate their uniqueness.
Despite living with Fraser syndrome, she confidently embraces her individuality, using bright clothing to shift focus from her disabilities.
Now a psychologist, Kirsty inspires others to celebrate their uniqueness.
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FunTranscript
00:00I was born with an extremely rare syndrome called Fraser syndrome and one of the defining features
00:07I suppose you'd say of that syndrome is an eye condition called cryptophalmia and crypto
00:15basically means hidden. So you have a very underdeveloped eye that's basically covered
00:21over completely with skin, no eye lid, there's no eye lashes and most crucially there's no opening
00:30for the eye. So that is what I was born with. I think historically there's only been 250
00:37cases recorded the last time I checked.
01:00So
01:16I've decided to get my socket stitched up and have the eyelids closed over the top.
01:22So that's the procedure I'm going for next week at St George's Hospital in London.
01:28It'll be yet another adjustment but I hope it's the final adjustment
01:33and then I can take my time processing everything.